Advocate Has Pushed for Expanded Genetic Testing Access
A mother is lobbying for policy changes after her daughter’s rare kidney disease diagnosis.
U.S. Special Needs
Recent news
October 6, 2026
Resolution Introduced to Boost Peroxisomal Disorder AwarenessA new legislative push aims to highlight rare genetic conditions that impact roughly 1 in 50,000 newborns annually.
October 6, 2026
Level Access Named Leader in Digital AccessibilityThe platform helps organizations build digital tools for the 1.3 billion people worldwide living with disabilities.
October 6, 2026
Congress Reauthorized Rare Disease Voucher ProgramThe federal initiative aims to speed up drug development for children by shortening the FDA review process.
October 4, 2026
Inventor Developed Visibility Light for Wheelchair UsersA new safety light mounts to wheelchairs to help riders stay visible to drivers while traveling at low heights.
October 3, 2026
New Book Aims to Help Children Understand DuchenneA family has released an educational resource to support children navigating a Duchenne muscular dystrophy diagnosis.
October 1, 2026
Disability Providers Have Reduced Services Amid Staffing CrisisNew survey data shows providers are declining referrals as federal funding cuts and labor shortages limit access to care.
October 1, 2026
Parents Published Children's Book on DisabilityA new book helps parents normalize wheelchair use when explaining spinal cord injuries to their toddlers.
September 30, 2026
United Cerebral Palsy Awarded Grants to Three ProjectsThe funding supports new research on diagnosis and care for the 1 million Americans living with cerebral palsy.
September 29, 2026
Social Security Added 14 Conditions to Expedited ListThe Social Security Administration now offers faster processing for applicants with these specific medical conditions.
September 29, 2026
Federal Research Center for Disabled Parents Faced ClosureThe national center, which supports parents with disabilities, recently lost federal grant funding.