Biogen Launched Rare Kidney Disease Campaign
Olympic gymnast Suni Lee is partnering with the campaign to help patients identify symptoms and talk with their doctors.
Updated on Oct. 9, 2026 in Alzheimer’s
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Biogen has launched the Keep Your Momentum educational campaign to support the estimated 5,000 people in the United States living with rare kidney diseases known as C3G and primary IC-MPGN. The initiative provides patients with tools to help identify nonspecific symptoms and communicate more effectively with their healthcare teams.
Why it matters
The campaign aims to help patients overcome common challenges in advocating for their own care, particularly because C3G and primary IC-MPGN often present with nonspecific symptoms that can be difficult to recognize. By offering customizable resources, the initiative seeks to improve the quality of clinical consultations for these rare conditions.
The campaign is based on estimated prevalence data for C3G and primary IC-MPGN, which affect approximately 5,000 people in the United States. Future research is planned to assess whether these patient resources successfully increase the frequency of doctor-patient conversations regarding these conditions.
The players
Biogen
A biotechnology company focused on the development of therapies for neurological and rare diseases, including treatments for rare kidney conditions.
Suni Lee
An Olympic gymnast who received a diagnosis for a rare kidney disease in 2023 and is acting as a spokesperson for the campaign.
The details
The Keep Your Momentum campaign provides a dedicated website and social media content to help patients navigate the diagnostic and treatment process for C3G and primary IC-MPGN. These resources include customizable materials designed to help patients structure their symptoms and questions before visiting their physician. The initiative is part of Biogen's broader effort to expand its commitment to nephrology and the treatment of rare diseases.
Timeline
Suni Lee received her rare kidney disease diagnosis in 2023.
Suni Lee competed at the Paris Olympics in 2024.
Biogen launched the Keep Your Momentum campaign in October 2026.
Suni Lee aims to compete at the Los Angeles Games in 2028.
Health Landscape
This initiative reflects a broader trend of pharmaceutical companies investing in patient advocacy and education to bridge gaps in managing rare, underdiagnosed conditions. It sits within Biogen's expanding nephrology portfolio, signaling a strategic shift toward supporting patients beyond the distribution of clinical therapies.
If you or a loved one are managing symptoms of C3G or primary IC-MPGN, utilizing structured resources can help you prepare for your next clinical appointment. It is worth discussing these specific rare kidney conditions with your doctor to ensure your symptoms are being properly tracked and addressed.
The takeaway
The campaign emphasizes the value of proactive communication with your medical team when dealing with rare, nonspecific health symptoms. Patients can consider using available online resources to organize their health history and questions for their next consultation with their physician.
Further reading
For more information on managing chronic conditions, visit the Alzheimer’s section.
More information
To access patient resources and conversation tools, visit the rare kidney disease patient education resources website.
Source note: This article includes information reported by MM+M - Medical Marketing and Media.
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