ALS Advocate Brooke Eby Has Died at 37
Brooke Eby, who was diagnosed with ALS at age 33, used humor to advocate for the community.
Updated on Oct. 2, 2026 in Alzheimer’s
The ALS community is mourning the loss of advocate Brooke Eby, who passed away at age 37. Diagnosed with amyotrophic lateral sclerosis in 2022, Eby was a vocal champion for those living with the disease.
Why it matters
Eby's advocacy highlighted the physical and workplace challenges faced by those living with the progression of ALS. Her work with the community ALStogether helped raise visibility for the realities of navigating the condition at a young age.
Brooke Eby was diagnosed with ALS at age 33 and lived with the disease until her death at age 37. While her personal trajectory was documented, specific epidemiological data on early-onset ALS outcomes remains a focus for researchers.
The players
Brooke Eby
An ALS advocate who founded the community ALStogether and documented the progression of her own disease.
Salesforce
A technology company that adapted work arrangements for Eby following her diagnosis and fostered an internal support group.
Marc Benioff
The leader of Salesforce who formally announced the death of Eby.
The details
Eby utilized social media to document the progression of ALS, often employing humor to communicate the day-to-day experiences of the condition. Her employer, Salesforce, adapted her work arrangements as her physical capabilities shifted following her 2022 diagnosis. She further expanded her impact by founding ALStogether and inspiring an internal corporate group known as ALSforce.
Timeline
Brooke Eby began working at Salesforce in 2016.
She received an ALS diagnosis in 2022.
Brooke Eby died on October 1, 2026.
Health Landscape
This news follows the pattern of increased public awareness for ALS established by the 2014 ALS Ice Bucket Challenge. Such personal advocacy continues to be a central force in highlighting the needs of the patient community and driving the evolution of care.
For those managing a neurodegenerative diagnosis, working with employers to adjust environments and identifying support groups can be a critical part of maintaining quality of life. Discussing workplace accommodations and advocacy resources with your physician or a care team is a helpful step.
The takeaway
Eby's life emphasizes the importance of community support and humor in navigating chronic, progressive illnesses. Readers may benefit from exploring local or digital support networks if they or their loved ones are managing significant health changes.
Further reading
Learn more about advancements and community support in Alzheimer’s.
